Fighting Dystonia, Chronic Lyme Disease & EDS Type 3… any questions?

Posts tagged ‘therapies’

Treating Dystonia

There are a number of different options sufferers are offered when diagnosed with Dystonia ranging from Deep Brain Stimulation to botox injections/ medication, and ¬†physiotherapy and psychotherapy. Unfortunately depending where you are in the world this can be a bit of an insurance or post code lottery. Each of these different treatment options has it’s own list of pros and cons, and they are not always the same¬†for each suffer just because it helped another.

Deep Brain Stimulation can help significantly improve the symptoms of Dystonia, which in turn improves a persons quality of life. I know I would jump at the chance of having the surgery if I was eligible, but unfortunately like many others I am not classed as being ill enough for it. There is also no guarantee that it would improve symptoms, there is a chance of a negative complications during surgery or if an infection occurred post-op.

Injections, medication, physio and counseling also can help sufferers manage the symptoms and get about with their day to day life. However their is no guarantee how long the improvements will last. For example, over time its possible to develop antibodies and grow resistant to botox injections.

Treating Dystonia generally involves a combination of all of the above. One treatment alone often is not enough. however every individual is unique and there is always an exception to the rule.

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