Fighting Dystonia, Chronic Lyme Disease & EDS Type 3… any questions?

Posts tagged ‘studying’

Start of Something New

Happy, on top of the world, ecstatic, over the moon. Put this combination of emotions in to one and that is me now. Today has been a fantastic success. I attended my first day at college and loved every second of it. The lecture today was on Anatomy and Physiology, which was just perfect as I find it an incredibly interesting subject. A lot of what we covered today I had already learned at university so it was a bit like revision, I loved this as I had remembered everything, which enabled me to contribute to the lesson more.

Tomorrow’s lecture is a practical one. This excites me and makes me nervous. I am sure my body shall be fine with it, but as with all things in life you can never be a hundred percent certain especially with Dystonia, hopefully tomorrow’s practical shall put the tiny worries to rest. The four hours tomorrow shall all be practical but from next week onwards the Friday lectures shall be 2 hours practical and 2 hours focusing on business and how to set up your own business. This is fantastic as once qualified I shall be setting up my own business so that I can work from home.

I decided not to attend riding today as my sight has not been great. I have been full of the cold which has caused more spasms. It has particularly been causing an increase in spasms in my eyes. Annoyingly the spasm that has occurred most is the one that causes my eyes to roll up into my head, leaving me blind, the pain of this particular spasm causes me to have a Non Epileptic Seizures most of the time. This happened today at college, thankfully before the lesson started, but reassured me that I was making the right decision not to ride as I would be putting myself and the volunteers at risk. I am looking forward to next weeks session though.

I feel like a ball of positive energy! I am brimming with happiness and full of excitement for tomorrow. Being able to study again is so satisfying and opens many doors for me. In a way I feel normal.

I’m so happy!

 

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My thoughts and theory’s

So today my head it full of things bouncing off each other. I had a theory that I touched on briefly post or two ago that I have now put into action. Today I went to specsavers to get my eyes tested, as I was convinced my last eye prescription was wrong, my thoughts was right. My eyes often feel like there being strained and I find it hard to focus on words or the TV etc. as it really hurts my eyes. This, I think, is why my eyes then spasm upwards and go blind. Therefore today when I purchased my new glasses I also had a tint put on them and anti-glare (the Optician felt it was necessary, and would help my eyes a lot). If my theory is right then this should completely stop my blindness. I am hoping that my theory is right!

I would love to talk to my consultant about this theory and all the amazing improvements I am making at the moment, so that he is kept up to date and could offer his own thoughts and advice. Somehow though I don’t think this will happen any time soon, especially as the urgent email (he told us to email him if we needed him) we sent him 4 weeks ago has still gone unanswered, despite phoning his secretary to chase it each week. This I find slightly odd as when I was not his patient he answered our emails the very next day. I shall just wait/chase them some more and see what happens.

I am still mega excited about the prospect of returning to uni in September! I am still improving a little bit more ever day, which I am taking as a positive sign. Therefore I have completely thrown myself back into studying/revising the topics we did at uni. I just cannot wait to be back there!

 

Renewed Hope

Today I had a fantastic conversation with my university, they have decided to give me an extension on my sick leave until next September. They are going to call me again in February to see if my condition has improved.

This has given me so much hope! My dreams of being a midwife are not over! I have just got to continually push my brain/body in an attempt to make a recovery. I am hoping that I shall get there! Time to start revising everything I had already learned as well to refresh my memory!

I am so happy!

 

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