Fighting Dystonia, Chronic Lyme Disease & EDS Type 3… any questions?

Posts tagged ‘RNOH’

Inpatient Program So Far…

I am currently an inpatient at The Royal National Orthopedic Hospital Stanmore on a rehabilitation and pain management program. I have just started my second week and so far it has been an interesting learning curve. The program has many components to it which all relate back to pacing. It would seem that after four years of my neurologist stressing to me the need to pace my life I may finally be learning – but don’t celebrate yet, it’a slow change but I’m getting there.

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Morning Physio Exercises 

I have been really impressed with the course so far, the staff are fantastic. My assigned physio is fantastic and happily allows me to laugh my way through our sessions. Hydrotherapy has been my favorite therapy so far. The water provides resistance whilst enabling ease of movement in a relatively pain free environment. We had a session on foiling flare ups today, it’s rather reassuring to know that when I am discharged at the end of next week that I shall leave with a plan that shall help give me the tools to cope with it.

Whilst I am overall thrilled with the program and have been impressed with the therapies provided I cannot help but be tickled with the kitchen. So far everyday I have explained that I am allergic to X, Y and Z, and everyday I have been served food that I’m anaphylatic to. Ironically the hospital won an award last week for their catering…

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