Fighting Dystonia, Chronic Lyme Disease & EDS Type 3… any questions?

Mind, Heart, Body…

Midwifery. One word that for me will always be bitter sweet. My dreams and aspirations 6 years on are still pinned tightly to it. It’s one of the reasons I struggle with having good spells with my conditions, which I know sounds ridiculous. Whenever I’m going through a particularly well controlled phase there’s a voice in the back of my mind that starts questioning whether now’s the time to start an HE access to Midwifery course so that once my son is in school I can apply to return. It’s a cruel mindset that I seem unable to shift.

I know my reality. I know that my good spells don’t last. That eventually as my injections wear off I will be wracked with spasms once again. I am accuately aware that due to my EDS my joints will continue to deteriorate; I’m 25 and already have been told I need a double knee replacement. If I examine what a good period means to me, you would probably laugh; a good spell still involves dislocating at least one or more body parts a day, it still involves high levels of pain, it still involves spasms to varying degrees. I know this. Yet as I lie in bed trying to catch up on some rest whilst my son naps I find myself reading the latest Royal College of Midwives articles because I daren’t risk falling behind on the latest developments in Midwifery just incase in time I go back.

My head knows that I should accept all this, my heart longs for my return to working on the wards, and my body is like an ice sculpture that has been left in the sun and is starting to melt and crack.

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Comments on: "Mind, Heart, Body…" (2)

  1. Sandy Evason said:

    I have no words just deep, deep love and enormous respect. Sending you sooo much love and positive vibes. Keep that dream alive, Sweetheart, they do come true xx

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