Fighting Dystonia, Chronic Lyme Disease & EDS Type 3… any questions?

I’ve been toying with the idea of writing this post for a few weeks. It’s a tad on the personal side, but as I find blogging so therapeutic I figured it may help to write it all down. As you know almost four months ago I gave birth to my handsome smiley boy. It’s  been a whirlwind few months since and I love being a mum. However I’ve been experiencing complications ever since and after my last doctor’s appointment I feel a bit shaken up.

With the exception of 5 days (spaced out) I haven’t stopped bleeding since I gave birth. At first I put this down to the fact I obtained a second degree tear during my labour that took a long time to heal.  I frequently wonder if its related to my EDS but Mr Google hasn’t shed much light on that. I’ve tried hormone medication designed to prevent the bleeding but other than causing further hellish stomach pains it didn’t make a difference. I’ve now been prescribed a new medication to make me clot more whilst I wait for an urgent appointment with the gyny team.

It’s been decided that I need a procedure to look around and see if there is any obvious issue that hasn’t already been picked up on my scans that have been carried out over the last couple of weeks. My Dr’s advice has been that if the scan doesn’t show anything obvious that can be treated, then she recommends that I have a serious chat with the gyny team on having a hysterectomy. I find it hard to believe that at 24 years of age that a hysterectomy is my only option. In my mind that just isn’t an option and there has to be others.

I struggle with my conditions day to day as it is, throw in recovering from major surgery and the complications that come with that procedure and it doesn’t seem worth it. As you can imagine I’ve been quite wound up about it; I would love to hear from anyone who has had similar postnatal complications, and if you don’t mind sharing I would be curious to hear what treatments you tried.

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Comments on: "Spoonie Issues; Postnatal Complications" (1)

  1. Yes, my dear Rebecca. I had a similar issue. Bleeding for several months, though I was passing clots. I had a D/C. It solved the problem.That was 24 years ago. A hysterectomy sounds rash. I live in the U.S. I would get at least a second opinion. Best to you and your family. I love your blog and admire you and your courage.

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