Fighting Dystonia, Chronic Lyme Disease & EDS Type 3… any questions?

Happy 4th Birthday Blog

Can you believe that today is the fourth birthday of Dystonia and Me? It is astounding just how much difference another year makes. My battle with Dystonia and my other conditions is one that for a long time I have felt I was drowning in. It has seemed like a constant tug of war, desperately trying to stay on top of my symptoms. For many years it seemed to me as if my little alien was always ten points ahead of me, and I was treading water trying to regain my lost control and catch up. Today I can quiet firmly say I am miles ahead of my alien, I am now basking in the peace of coping.

I’m not saying that I don’t have my down days, there are plenty of days when my spasms, seizures and dislocations just seem too much. However, what I am achieving makes those days worth while. In the last year I’ve completed my first year of uni, managed to live a life so full that it’s been beyond my wildest expectations for myself, I have been nominated for an award, interviewed several times by the BBC Three Counties, and I have had a blog post censored (which is why if you’ve been looking for the last one you have been unable to find it). I’ll let you guess as to which one of those I am most proud of.

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When I started blogging it was to raise awareness of Dystonia, in a short period of time it has grown to encompass a whole host of conditions that I live with. In 2012 when I created Dystonia and Me, I had hoped a handful of people may read this site and learn something new that could have the potential to help others. I never expected this blog to become the lifeline that it is for myself. Blogging my experiences, good and bad, has enabled me to accept my complications and learn to love myself again. Through this blog I have come into contact with incredible people who I admire greatly.

If you had told me a year ago I would be writing this, I would have laughed. I was so caught up in my worries and excitement about starting uni that I never thought to think what could possibly lie ahead. Who knows what will happen in the next year!

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Comments on: "Happy 4th Birthday Blog" (3)

  1. Congratulations and well done (especially for the things we didn’t get to read about)!

    Incidentally, if you would like to write a piece for the newsletter I edit, please feel free to email me privately.

  2. I so feel for you. As I watched and read tears filled my eyes, chills ran up and down my spine. Your words spilling out were mine.
    Throughout many medications including pain meds…I get you. You are me. Here I share my story finally with the world. I will share with everyone here my story with battling Chorea and Dystonia. Here is a link to my YouTube Video. My cause is to Empower, Uplift and Validate Women all over the world to bring out their inner beauty. https://youtu.be/fqIpB502OpM

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