Fighting Dystonia, Chronic Lyme Disease & EDS Type 3… any questions?

Finding Benedict

I was up in London today for an appointment with my fantastic neurologist. Whilst I always stress over the little things like timings, how the injections will go and medications, I never stress over seeing him. His manner is so calming that during the appointment I feel as if it doesn’t matter what he says, it’ll be okay as we will always put a plan of action in place to try and make the future as pain free and positive as possible! The hospital I attend has some fabulous Toy Story themed stickers on the wall in the waiting room which I love. As I’ve mentioned before I always picture my Dystonia to be a Toy Story style alien named Benedict. Which is why this picture naturally had to happen today 🙂

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Finding Benedict!

I’m currently coping with Optic Neuritis on top of everything else. The hospital which I’m under for this had decided to leave it up to my neurologists as to whether or not I was treated with steroids. He has decided that he wants me started on steroids and wants an MRI with contrast carried out, as this is my second flare up in six months. I shall be spending Thursday at the eye hospital so hopefully I can talk to them about getting all of this put in to place and moving forwards.

Overall today went extremely well.

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Comments on: "Finding Benedict" (1)

  1. Damon Stalford said:

    Dear Benedict, way to be so positive. 🙂 I have Cervical Dystonia and other medical stuff as well, iy hasnt been fun. It has caused my neck to fall apart 2 years ago major sugery. Titanium hard ware several levels. Now I’m looking at another neck sugery. I get steroid injections every 3 months, 8 to 10 shots. Neck area. Stay strong and positive. 🙂

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