Fighting Dystonia, Chronic Lyme Disease & EDS Type 3… any questions?

Curve Ball

You would think after almost four years I would have fallen into sync with the pattern of my botox cycle. I would know when to expect the good spells, and be prepared for the out of control moments. Perhaps it’s simply misguided denial that has resulted in me still being unable to predict these moments, it wouldn’t surprise me really.

Up until this evening  I had been enjoying a really good run. My body had been on very good behavior and as usual when I’m in this part of the cycle I had been making the most of every blissful pain free second. This evenings turn hit me out of the blue. I had been feeling slightly off whilst getting ready for a night out with my friends but hadn’t been able to quiet put my finger on why, so had decided to just ignore it and carry on laughing.

It wasn’t until we started making our way to our first destination of the evening that I realized what was wrong. Sitting down I had not noticed that the top of my back was slowly contorting. Each step I took was agonizing. My body simply twisted and further muscles joined in.

I’m not a naturally quiet person, I only generally quieten down when I’m in pain. The fact that I was virtually silent alerted my friends quickly that I needed to go home. So here I am now, lying down, arguing with myself, dressed up for a night out.

But hey at least I recognized I needed to come home.

Advertisements

Comments on: "Curve Ball" (4)

  1. Maybe it’s time u got an DBS fitted

  2. Love ❤ always gonna be good and down days

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

Tag Cloud

%d bloggers like this: