Fighting Dystonia, Chronic Lyme Disease & EDS Type 3… any questions?

Surreal Radio Experience

Today has been an experience to say the least. Whilst rushing around this morning attempting to persuade my non-cooperative arm into a jumper, I noticed I had a tweet from my local BBC radio station. I stood, gaping, one behaving arm in its sleeve, the other flailing through the air with a mind of its own. I’m not sure what I felt more, excited or nervous that I would ramble on faster than listeners could keep up with. Noticing this tweet a whole 40 mins beforehand wasn’t much prep time, but it wasn’t an opportunity I was going to turn down. As I discovered after a quick pre-interview chat, the show had decided to get in touch after reading my Cosmo article. The topic Disabled Dating, is one that many of you may be aware from my previous blog posts that I feel passionately about.

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It was fantastic to have the opportunity to discuss the stigma too often experienced because of disability. Whilst some people are absolutely fantastic, I’ve thrown my drink down my date before because I foolishly held it in my arm that spasmed; thankfully he laughed it off, others can be very closeminded and unwilling to consider the prospect of dating a disabled person. It was interesting to listen to George Dowell who was also on the segment and featured recently on The Undateables. Now don’t get me wrong, I haven’t changed my mind on the show. However it was thought-provoking listening to his experience.

If you fancy checking out the segment here is the link, the piece starts at 1h08, I come on at 1h16. http://www.bbc.co.uk/programmes/p03dsjr5

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Comments on: "Surreal Radio Experience" (3)

  1. Rebecca, Congrats on the radio interview. Give yourself a pat on the back for putting yourself out there and addressing the tough issues. xxx -Pamela-

    • Thank-you so much Pamela xxx

      • Lisa22frances10@yahoo.co.uk said:

        Well I’m 37 and have suffered from Dystonia since about the age of 14. So it has been quite tough, I have only had my diagnosis for about 5 years, although I have been seen at the top hospital, in London, so living with just a suspected diagnosis since quite early on following a MRI scan. So its been the uncertainty; my muscles have been playing up since the beginning, Painfully and not so painful. Dystonia doesn’t run through my family, that we know of.
        I have recently been diagnosed with Epilepsy, as had a few seizures. The medication seems to be working.

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