Fighting Dystonia, Chronic Lyme Disease & EDS Type 3… any questions?

Settling In With Spasms

It’s the end of my first week at university already and I love it here. I spend the majority of my waking moments laughing with my peers and attempting not to get lost. One of the joys about university is the simple fact that I am surrounded by a large increase in people, and this naturally means that there is diversity amongst the student body. Every day so far, I have met someone with a different type of medical condition. This has really helped me to relax and settle in.

12032298_762857283840053_87691901_nTypically my Dystonia hasn’t left me alone but I haven’t let that bother me too much. I twitched the other day and caught a police officer, who luckily was more concerned that I was okay than anything else. Truth be told I was torn between being mortified and trying not to laugh. I was simply embarrassed to the point of laughter. My new friends and flatmates have all seen a couple of spasms now and have handled them really well, mainly with laughter which is all I could hope for.

I phoned the Neurology hospital that I attend and they still have no idea when my next lot of injections will be, which is causing me some concern. My injections are due on 30th September, this would have been the seven week mark so was pushing it as it was. Unfortunately the hospital staff still have no dates to give patients as to when the injections are going to be. My spasms are unfortunately already beginning. My arm never really completely stopped spasming during this cycle. I am keeping my fingers crossed that I get will my injections date sooner rather than later.

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Comments on: "Settling In With Spasms" (1)

  1. hang in there…you are doing great xx

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