Fighting Dystonia, Chronic Lyme Disease & EDS Type 3… any questions?

Another Referrel

Eye-chartSitting back in the upright, green leather chair, I stare straight ahead at the wall with my left eye covered up, where supposedly I should be able to see two rows of letters. I can’t see a thing. Not even there outline. I can see a white blurry box on the wall but that’s about it. The optician is quite frankly horrified at the deterioration of sight in my right eye. It has only been eight months since my last appointment, this dramatic result shocks us both. I thought my glasses prescription just needed a slight tweak. As it turns out new glasses cannot fix this issue. By the end of the examination she murmurs a simple sentence that chills me. “I need to refer you to the hospital, the muscles in your eye are not working properly”. What?! This was meant to be a routine appointment.

I questioned whether it could be my Dystonia, and while it was a possibility, she was not convinced it was. She explained the three different medical specialists I would most likely see at the hospital, the last being a neurologist. It always seems to end up there.Can I just have a new brain? As it always goes with these things it shall most likely be a wait before I am seen. In the meantime the possibility of another intruder controlling my body, my sight, hangs in the air. If it turns out to be Dystonia then other than piling me with more medication there is very little they can do, as they are unable to inject these particular muscles.

Over the years I have always been told that my left eye has compensated for my right. Its doing this now more than ever. With both uncovered I can see, things get blurry now and then but generally I’m okay. Cover up my left eye and the words in front of me are blurry, I cannot even focus on my own hands! It’s times like these that I want to take the faulty parts of my body out, line them up and just yell at them. Realistically I know it’s not going to get me anywhere, I’ve also banned myself from googling my symptoms, I know it will just tell me I’m  going to die, it’s one of the things google does best! I’d rather wait for hopefully a much more optimistic diagnosis from a Doctor.

So I’m keeping my fingers crossed that it’s not the Dystonia, and that it is a condition that they can easily treat! It would make a nice change.

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Comments on: "Another Referrel" (6)

  1. Good luck with your eyes!

  2. Graham Hill said:

    I have had a similar experience to this last year. I have DRD dystonia, supraventric tachycardia, familial high cholesterol, degenerative disk disease, NAFLD liver disease, gallstones, and T2 diabetes.
    I went for an eye test, thinking I needed new glasses. But it turned out to be diabetes which was making my vision blurred. I was shocked at the amount of deterioration which had occurred. That was in October last year. Since then, although I have got good control of my diabetes, my eyesight has not improved. In fact it seems to be getting worse. I have noticed small shadows and dark spots in my vision. It’s like looking at a jigsaw with a few of the prices missing. I am going for a diabetic eye test in October, so I will see how things have changed. Blindness scares me more than any of my other conditions. I love reading, art and photography. I don’t know what I’d do if I couldn’t do these anymore. I’ll just have to think positive and hope it stabilises.

    • Hi Graham, I am so sorry to hear of your medical conditions. As a fellow lover of novels I can only try to imagine how hard this is hard for you. I hope that as your diabetes is controlled you see some improvements with your sight x

  3. I remember my wife (DRD) always had different results of eye tests; when she received the glasses she said: this one is not good…. result was she just used some of that cheap reading-aid glasses from the local shop..

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