Fighting Dystonia, Chronic Lyme Disease & EDS Type 3… any questions?

When you hear the word university student what do you picture? I’m sure that many of you conjure up an image very similar to my own. One of students sitting in a small dingy  flat knocking back a stomach churning concoction from a mix as part of a drinking game; or stumbling back, shoes in hand, giggling from yet another night out. My ideas are based on experiences from my year at uni in 2011/2012. Whilst planning my return to university my mother and I have had many discussion on student life and how sensible I’m going to have to be this time round.

I have struggled to get my head round the fact that frankly I do not have the stamina I once did. My medication, spasms, and pain levels all have an impact. Now that’s not to say I can’t have a night or two out. I just cant do it back to back every night of the week. If I did I would be a spasming wreck and back in the hospital in no time. Whilst mentally I am the same old Becca, physically I am much weaker and more disabled than when I was last at uni. When I was last a student I was not battling Dystonia, I did not know then what it was like to lose control of your body like I do now. Although my condition is well controlled, it’s still up and down. I know when I’m on muscle relaxants I can’t drink, so my body will force me to be sensible every 6/7 weeks when my injections are due. The rest of the time will be down to self-control, and learning what works for me. Prioritising is key to making sure that I am well enough to attend lectures, and doing the studying that is required etc.

I have not lived any element of a student life since becoming ill. It will be a big adjustment process, which I will have to catch on to quickly. As my moving day creeps nearer (24 days) my nerves increase. I’m anxious to take this next step but nervous at just how much of an impact Dystonia shall have. However I am aware that as usual I am worrying over something that is outside my control, there is nothing I can do but enjoy my time at university and handle my spasms with my medical team as they come.

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Comments on: "Dystonia; Becoming A Student" (6)

  1. samcharvey said:

    This is my favourite part! Much love from your Mother! xx 😉

    • samcharvey said:

      Whoops this bit : Prioritising is key to making sure that I am well enough to attend lectures, and doing the studying that is required etc.

  2. Mike Watkin said:

    Not sore I agree with “Whilst mentally I am the same old Becca, ” I think you are a far stronger and wiser and interesting Becca both mentally and physically.

    Mike Watkin

    >

  3. Dear Becca, I have generalised dystonia and it started in my feet at 2 years as I got older it spread to all of my body and then at 6 and a half had an implant put in and I still spasms but I live a normal life and I can do every thing for my self now. I know when where is something wrong coz I go bk to the way I was before the implant was put in, witch is head of the the right and into spasms as well as the rest of my body

    Many thanks Lucie Armstrong Sent from my iPhone

    >

  4. […] the reality for one blogger, Becca, who lives with–and fights–dystonia, chronic lyme disease and EDS type […]

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