Fighting Dystonia, Chronic Lyme Disease & EDS Type 3… any questions?

Word Search

I’m the sort of person that words come easily to, whether that’s verbally or written. I may pause to search for a word once in a while if my brain fog is bad, but normally I’ll pluck another out to replace it. It’s an unusual scenario when I feel so completely stumped and unable to find one to suit my needs. Yet for the past week that’s exactly how I have felt. I’ve tested every word I can think of, yet none quite fit. Which makes trying to describe the situation I’m in now difficult.

When I saw my neurologist last Wednesday, he decided to add Botox injections to my shoulder to see if this would help control my twitches. This has helped beyond my wildest imagination. At first the pain that followed I put down to my body reacting to the injections, after all I do experience similar pain in my neck each time I get my injections. However unlike my neck, the pain has not improved, even lying down at night is painful. Consequently sleep is almost non-existent . Carrying things, anything touching my shoulder is extremely uncomfortable. I don’t feel like pain is the right descriptive word however, though it most definitively applys the majority of the time, I don’t know how to verbalize the sensation that I am experiencing. It is so uncomfortable and is setting my teeth on edge as it is constant. Hopefully it will ease off soon.

On a more positive note I have attached below the photo below that I promised of me standing.

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