Fighting Dystonia, Chronic Lyme Disease & EDS Type 3… any questions?

Feeling Good

Last time I posted I felt that I was balancing on the knifes edge and was feeling pretty negative, well I’m feeling darn good today and I plan on enjoying it. My legs have not been as bad the last couple of days, the swelling in my knees is going down and the pain in them is tolerable. This improvement has made such a mental difference as the pain was really beginning to get me down.

Having my pain levels go down has made the biggest difference as it is the pain that I struggle to deal with the most. I can cope with my body spasming, tremoring and getting into unnatural positions but the pain is what I can’t cope with. Normally it would be my jaw that causes the unbearable pain, so at least having it in my knees made a change.

I am now on half term, which mean no college and no riding 😦 however I know that it is best just to let my body rest and recover this week, before I throw myself back into everything head first next week. On a positive note I made into college last week!! After being too ill to go in the week before I was determined to drag myself out of bed and into college – trying to get dressed whilst my legs where on strike was interesting but  I managed it and it was the best thing I could have done. I know that I tire very easily these days but doing normal things like college make me so happy.

As I have mentioned before my cousin David and his friend Sam are running the London marathon for The Dystonia Society in April. I woke up to see a small article had been written on them in their local newspaper (Somerset). Its so positive to see awareness of Dystonia spreading!

I often say that I wish I could see inside my brain so I could have a better understanding of what exactly is going on. As other than all the medical jargon I have no idea what exactly it is doing…this picture describe it perfectly and makes me smile.

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Comments on: "Feeling Good" (1)

  1. I am so glad you are feeling better! I was worried about you after the last blog. The pain is what gets me, too. I can live with the twisting, etc., but the pain is sometimes intolerable. I, too, have to tell myself to get my ‘you know what’ out of bed and do something. I love to go outside and sit and watch the birds feeding at our feeders. During winter we get a lot of different birds here in Florida. Watching nature helps me relax and be thankful for the other good things in my life.

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