Fighting Dystonia, Chronic Lyme Disease & EDS Type 3… any questions?

Worrying

I feel like I am balancing on the knifes edge and that at any moment I could fall. My Dystonia alien and my Lyme Disease had really managed to lull me into a sense of ‘normality’, and over this past week have decided to send me flying to the edge of the knife filled with dread. Up until very recently I had coped rather well with everything, but everything seems to have gone out the window now.

Whilst I have remained seizure free there have been a few moments recently where I have felt right on the edge of one. Last Monday my mother and my little sister spent half an hour looking after me and talking non stop to try to keep me conscious. This has not happen in quite a while and was a shock to all of us. My legs have been bad recently, to the point that last week I did not make it into college on either day, which was to me a big defeat in my battle against the two conditions.

Whilst the pain is bad and gets me down, it is the unknown that I struggle to deal with. My body has progressed and regressed so many times, and each time I deal with it. However it gets harder to do so each time, and right now I have no idea which way my body is going to swing. It may pull through this horrid period and be absolutely fine or it may take a nose dive.

I know there is not much I can do other than stay positive but I can’t help but be scared. Hopefully this is just a bad period and soon my mind will be put at rest.

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Comments on: "Worrying" (2)

  1. Debbie Griffin said:

    Thinking of you – you are such an inspiration 🙂 xxx

  2. you are wonderful! xoxo i am so inspired by your blog!

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