Fighting Dystonia, Chronic Lyme Disease & EDS Type 3… any questions?

Finding My Feet

So after a few days of feeling a bit rough due to a viral infection, I am finally feeling more myself. I try to avoid picking up any illness as much as possible as when I get a bug my Dystonia acts up. It is like my little Dystonia alien waits until I’m feeling under whether to kick it up a few notches and go “Haha, so you want to rest? Well I’m going to distort both your legs, try to rest now!”. My alien really is a pain.

I finally feel like I am beginning to find my feet and learn to live life alongside Dystonia. I have accepted that I can’t live life with it in the background because it disrupts things too much, but I can live alongside it, and ignore it as much as I can. I kept my life on hold for a year, and now I’ve taken it off pause and from next Thursday I am shall be studying again.

In life people define themselves by their achievements and what they have done. I was considering this the other day and trying to figure out what I would define myself as/by. My thoughts flicked from Dystonia advocate, fundraiser, Author (My novel is almost finished), and reflexologist (when I qualify). It took awhile before I realised I didn’t have to choose just one, I can choose them all, as each one of them makes me proud. This last year I could have sat at home feeling sorry for myself doing nothing, instead I decided to try to educate the world on Dystonia – an ongoing task, fundraising for The Dystonia Society (I have raised over £1000 so far), started and almost finished my first novel, and found myself a new career path. I am proud of me!

Tomorrow I am attending a craft fair, where half of what is raised will be given to a Dystonia charity. I am rather looking forward to this. I like to Crochet so it shall be interesting to browse whilst helping raise awareness for Dystonia.

I saw this quote below, which has been taken from one of my favourite Disney films. For me it rings true. The path I am now on is by no means easy, and I struggle often, however it will lead me to where I need to be.

 

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Comments on: "Finding My Feet" (4)

  1. Who knows Rebecca what will be ‘just around the river bend!!’
    Onwards and upwards and always moving forwards. Love you xx

  2. samcharvey said:

    Who knows what is just around the river bend!! xx

  3. sandy evason said:

    Rebecca, we are so proud of you as you are, rightly and justly, proud of yourself. What an inspiration you are young lady. It was only natural that it took you a while to become familiar with the nature of the beast and now you have found where it has to be in your life, you can work with it. Sending you so much love for your on-going projects and I know, that whatever you set your mind to, you can achieve. Keeping you in my heart and in my thoughts and sending positive vibes your way every day. Love and hugs xx

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