Fighting Dystonia, Chronic Lyme Disease & EDS Type 3… any questions?

Summer Achievements

I spend 99% of my time shut up in my room due to Dystonia. Throughout the months leading up to this summer I was concerned as to how my body was going to react as bright light triggers my eye spasms (I am unable to currently wear my sunglasses or glasses as it causes a facial spasm) and I have to be careful in the sunlight as my antibiotics for suspected Lyme Disease causes light sensitivity. I had been thinking for a while now that I was just going to have accept that I would be having to spend the whole of the summer indoors.

It turns out I need not have been so pessimistic. This week I have been out in the garden several times with my family, family friends and had two BBQ’s. I was overjoyed to be out socializing with our family friends. We made sure I was in the shade so that both my body and eyes were protected. It was perfect and I had such a great time.

This achievement has left me thrilled as it has reassured me that I can enjoy this summer and the summers to come without worry. I only have to be a bit careful and that’s not much of an issue. Being out in the warmth and socializing has really lifted my spirits and left me feeling overjoyed and calm.

I look forward to seeing what the rest of the summer has in store.

 

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Comments on: "Summer Achievements" (3)

  1. woohoo! So glad you got out in the open for a bit! 🙂

  2. Murray Wright said:

    I followed your link and read up on Lymph disease, it makes me glad I live south of the equator. We have ticks, but not lymph disease, thank goodness. It is good that you can enjoy summer, in the shade you have little to no risk of skin cancer either.

  3. Love the success you achieved. Each moment spent with others, instead of in isolation, is a huge step forward. I wish you many more happy hours spent in the company of others. Social interaction keeps me alive.

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