Fighting Dystonia, Chronic Lyme Disease & EDS Type 3… any questions?

A Year On

I am now a year into my battle against Dystonia and life has changed dramatically. A year ago I was a student midwife, now I am disabled and spent a lot of time trying to raise awareness of Dystonia. When I first received my diagnosis it seemed like the end of the world, I did not know how I was going to be able to cope with life. Now I am much stronger person filled with determination to make a difference.

I strongly believe that everything happens for a reason and even if you cannot see the reason at first, eventually you will. I believe I have Dystonia so that I can help raise awareness of the condition and help bring about a change so that sufferers receive better treatment. I still have a long road ahead of me but its one that I won’t give up on.

I visited my GP today to ask about further treatment for suspected Lyme Disease. I responded extremely well to the first month-long course of antibiotics, due to this my GP has prescribed me 8 more weeks of antibiotics to see if I have any further improvement on them. My main improvement so far has been in my hands, which has been an extremely exciting development for me. When I see my consultant on the 16th of this month I am going to put across to him that Lyme Disease could have caused my Dystonia. As Lyme disease is curable with enough antibiotics some of my current symptoms could disappear for good, and only the Dystonic spasms shall remain.

I also visited my dentist this morning to have my teeth cleaned. I can not rate the dental practice highly enough, despite my spasms and seizures whilst I was there they were extremely kind and patient with me. As my tremor is dislodging some of my teeth it is calming knowing that the dental practice will do all they can for me.

This afternoon I have a session with my reflexologist. I am so glad that she is coming today as I am extremely exhausted. It amazes me how quickly my body gets tired. I used to be able to be on the go all the time but now just two quick visits have left me half asleep.

I still cannot believe that I have suffered from Dystonia for a year now. Whilst I hate this condition, I also embrace it. By embracing Dystonia I am able to put all my energy into raising vital awareness and funds. The more awareness that is raised the sooner a cure will be found. My next awareness challenge I have set myself is to turn parts of my blog into a book. I  hope that by doing this more people will learn of the condition.

Dystonia may control my body, but I control the path I take in life. I choose to make a difference!

 

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Comments on: "A Year On" (3)

  1. sandy evason said:

    What an amazing young woman you are Becky. and what a wonderful and strong Spirit you have. You are an inspiration to so many. May the Angels carry you when you energy flags and keep your Spirit soaring to the heights.

    I, too, believe that Lyme Disease could be the culprit, but so many Doctors don’t seem to recognise the symptoms. I suppose it is because there are so many of them. I pray that the antibiotics continue to improve things for you> Bless you, Sweetheart. Keep on keeping on. With all my love and positive vibes. xx

  2. William Babishoff said:

    I like your attitude. Keep it that way and you can only be a winner. And you will feel better, even if your body says otherwise. Writing about it is a great idea, others can benefit, but also, as time goes by you can reflect on your writings and see how they shaped your path. It’s amazing how much we go through that we don’t recall without assistance.

  3. I love this! ❤ We'll find a cure someday soon!

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