Fighting Dystonia, Chronic Lyme Disease & EDS Type 3… any questions?

Bring It On!

Yesterday afternoon I collapsed outside of my house and started having Non Epileptic seizures and Dystonic spasms. As I was not regaining consciousness I was rushed by ambulance (with blues and twos on) to my local hospital, where I was luckily treated by the lovely doctor who I had seen the last time I was there. The doctor remembered exactly who I was and even where the best place to take blood from me was! I was extremely impressed with how I was treated. I was unconscious for a couple of hours and have very little memory of the event.

Today I am rather sore, but I am also feeling inspired! My illness repeatedly puts me through hell and back, but its ok! I know that no matter what my little Dystonia alien throws at me, I will get through it. The image below depicts exactly how I am feeling.

Whilst Dystonia and Non Epileptic Attack Disorder are truly hideous conditions to have, I could be so much worse off. I could have cancer or another potentially life threatening disease! So I feel blessed that my condition merely limits me.

Through being ill I have had the privilege to talk to and meet some of the nicest people I have ever met. They all support me and give me strength! For example other bloggers and health activists; talking to them is a joy, as they can understand, advise and support me. Another great example are the amazing staff in the chemist by my doctors. I love going in there as I always get a warm welcome and have a quick chat, which puts me in a great mood.

I may suffer from a hideous condition, but I am so much more than just an ill person. I am a health activist, a fighter, I can be anything I want, and I can achieve anything I want. Just you wait and see!

 

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Comments on: "Bring It On!" (2)

  1. susanserene said:

    As always, dear girl, you inspire me with your positivity in the face of the challenges your body throws at you! It’s good that the folks at the hospital are caring and compassionate enough to recall you and your situation; what a blessing! Like you, and even though my dystonia is no where near as unpleasant and disabling as yours, I am thankful to be healthy and have only the discomfort that I do. My dystonia is not life-threatening and I’ve met lots of great friends because I have it!

    Keep your chin up and Never Ever Give Up, NEGU! We didn’t ask for this path we’re on but thankfully, we have others to share our journey with! God be with you.

  2. I have a dear friend who also has dystonia. We have known each other for 20 years but, believe it or not, today was the first time I witnessed her having an attack. (Please forgive me if I am using terminology that is incorrect or offensive. I mean no offense). I wonder if there is something she might have been doing that would bring on the dystonia–I have been looking on web sites and find little help. Could stress or perhaps not eating well be a problem? I love her and want to help her so that this does not happen again.

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