Fighting Dystonia, Chronic Lyme Disease & EDS Type 3… any questions?

Yesterday I had a lesson booked with the R.D.A, I was a bit nervous about this due to the new tremor in my leg. I had emailed my instructor in advance to let her know that it may be slightly more difficult than usual to get me on. Her reply made me grin “Tremor or no tremor, we will give it our best shot”! She stuck true to her words, they gave it their best shot and managed to get me on! I hopped up the mounting block, then with my arms round two volunteers shoulders they lifted me up on to Connie so that I was sitting side saddle, I then swung my Dystonic leg over Connie’s neck and slid my feet into the stirrups.

After about a minute of having my feet in the stirrups my right leg decided to spasm, it shot out sideways and upwards. The volunteers and my instructors remained very calm and Connie did not even notice. Thankfully it was not a long spasm, once it had passed we agreed that until my leg had settled down completely, I would ride without the stirrups. I was completely fine with this, and happily rode round without them. After a while, when I was certain it was OK to risk putting my feet back in stirrups, I did so, this time my body did not react.

My riding instructor does fantastic lessons, and I was allowed to do a lot more trotting this time. We did trotting in general, trotted in and out of cones and over poles, it was complete heaven! The three volunteers that stayed beside me, kept saying that you would never know I was disabled if you watched me ride, as I sat so well and had good control. I must admit them saying this really made my day! I have to have three people around me at the moment when I ride, due to my Non Epileptic Seizures, as I only had my last one a few weeks ago, so we have to play it safe.

I cannot put into words that happiness that riding gives me. I literally sit and grin the whole time I am riding, taking in every magical second of it! I cannot wait until next weeks lesson!

Last night I also attended my support/research group. I love these meetings, they are so mad and positive that I just there and smile. Despite both my leg and arm playing up whilst I was there, I had a fantastic time. The group is extremely supportive and I find that the different methods we are taught for coping with pain are extremely helpful.

Overall yesterday was an absolutely brilliant day. It was so worth the aches I have today. Despite the aches, if you put a horse in front of me now, I would still try and get on!

 

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Comments on: "Yesterdays R.D.A Lesson & Support group" (6)

  1. Rebecca, Thrilled to see you’re taking life by the horns! You go girl! -Pamela-

  2. Rebecca, Thrilled you’re taking life by the horns. You go girl! -Pamela-

  3. It sounds an amazing experience. I keep meaning to phone up RDA for more information but I then get cold feet :0)

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