Fighting Dystonia, Chronic Lyme Disease & EDS Type 3… any questions?

Benedict comes out to play!

Today Benedict (the dystonia alien) decided to really wake up and came out to play. I was happily curled up with my youngest sister watching the 8th Harry Potter film, and all of a sudden my index finger on my right hand started to tremor. This gradually progressed to the rest of my fingers and within a few minutes my whole hand was shaking. I laughed it off, not wanting to worry my sister, and carried on watching the film, trying to ignore my hand. It eventually stopped shaking.

For the next few hours it behaved rather well and I relaxed and forgot about it. However when my mum held my hand to help pull me up, later in the evening, it instantly went into spasm and the tremor returned. Again this seemed to last a fair while. Consequently I have decided to put my splint back on my hand and refrain from using it as much as possible until my little Dystonia alien has decided to settle back down.

I am trying to stay positive and not let the issues with my hand and leg get to me. Tomorrow I have my riding for the disabled lesson at my local stable, and I don’t plan on letting my Dystonia alien stop me from getting on the horse!  I know it will make mounting even more difficult and I know my body will be bad afterwards but riding makes it worth it!!!I cannot wait for tomorrows lesson!

 

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