Fighting Dystonia, Chronic Lyme Disease & EDS Type 3… any questions?

At this very moment in time, I feel like my body spent the whole of last night trying to get back at me for writing a positive post yesterday. I had spent the whole of yesterday feeling rather odd, like half my brain was missing and the other half was covered in fog. By the evening my jaw was really playing up, with my dystonia pulling each side of my face in opposite directions, which was agony, this of course then led on to hours of Non Epileptic Seizures. Consequently I have woken up this morning feeling like my body has been run over by a bulldozer and my head been repeatedly hit by a hammer. However on the bright side of things, today my jaw Dystonia is a lot better than yesterday.

I have decided that today I shall completely avoid solid food and only consume softer food such as soup or yoghurt, in an attempt to try and prevent my Jaw from playing up so much, as I really want to be able to enjoy tonight’s New Years Party.

Tomorrow I plan on writing a letter to my consultant, to ask for a date for him to administer my injections and to ask for a plan to be put in place for future injections to be administered. I am hopeful that I shall not have to wait to much longer for these injections, considering he was meant to do them several weeks ago, but failed to give us a date.

I am hoping that the New Year shall be filled with positivity and improvement.

 

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Comments on: "Lasts Nights Fight With My Jaw" (6)

  1. Rebecca, I simply don’t understand the behavior of your consultant in failing to give you injections that will give you needed relief and are not counter-indicated for medical reasons. Of course this is the holiday season and things tend to be a bit crazy but still, we are talking about your health and your comfort. I hope that in 2013 you can impress upon him the importance of more timely injections though that certainly shouldn’t be your responsibility. -Pamela-

  2. I wish your consullant could have been in the room with us Rebecca for your 5 hours of seizures last night, starting with you collapsing from standing onto a hard floor! The medical profession do not seem capable of viwing the wider picture, only the illness. keep cheerful my beautiful daughter xx

  3. I wish your consullant could have been in the room with us Rebecca for your 5 hours of seizures last night, starting with you collapsing from standing onto a hard floor! The medical profession do not seem capable of viwing the wider picture, only the illness. keep cheerful my beautiful daughter xx

  4. Keep up the posativity…..you will win the battle and give othets so much strength via your journey xx

  5. […] Lasts Nights Fight With My Jaw (dystoniaandme.wordpress.com) […]

  6. […] Lasts Nights Fight With My Jaw (dystoniaandme.wordpress.com) […]

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