Fighting Dystonia, Chronic Lyme Disease & EDS Type 3… any questions?

The count down to February!

Today I have been  rather down. Which I suppose is to be expected. Most days I cope pretty well, but today I have felt so angry and upset. In February I am meant to be returning to Uni. Each day, February gets nearer and I get more and more upset and scared. When I left uni only my jaw was affected, and now I often go blind, I’m  in a wheelchair and one arm doesn’t work.

Every day I try to push my body more and more, in an attempt to re-train my brain. I can’t imagine not going back to uni. The thought of not going back reduces me to tears every time, because I absolutely loved my course and cannot imagine doing anything else  with my life.

At the moment my options are to somehow manage to re-train my brain in the little time I have left, or give up and tell my  uni just how ill I am. I have to go with the first option, but there’s a little voice in the back of my head, that I am desperately trying to ignore, which is telling me the second option may end up happening.

I have had enough of this condition, I want to go back to my lectures, my community visits and my night shifts on the labour ward. The buzz of uni life. I want my old life back!!! I have until February to get better. I’m determined to it. It’s just working how to do it that’s the hard part.



Comments on: "The count down to February!" (1)

  1. Aww bless you, I think your entitled to have a few down days now and then, sounds like you’ve been so very strong through all of this, you are human after all. Must be awful but try and be positive, I often think of you and how you are doing, and I’m keeping everything crossed that things improve for you soon. Take care xxxxx

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