Fighting Dystonia, Chronic Lyme Disease & EDS Type 3… any questions?

The Weather and My Dystonia

So it is getting to the time of year I love! The trees are turning beautiful colours, the air is getting cooler which always makes me start hoping for snow, and the shops start displaying amazing Christmas decorations. Just going out and about at this time of year puts a giant smile on my face. However my Dystonia alien has decided that he hates the cold! Every time we venture out into the cold, my Dystonia alien acts up, causing my right arm to spasm and shake violently.

I am therefore putting my foot down. The Dystonia alien may have control of the majority of my body but it shall not take control over my favourite time of year! I want to be able to go out in the snow! When out shopping today with my mum, we invested in some warm/fluffy mittens, and a lovely warm blanket to cover me up with when I am out in my wheelchair. My theory is if I wear loads of layers and cover myself up as much as possible then my body should hopefully not go into spasm.

It shall be another experiment, which hopefully turn out to be just as positive as the last.

 

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Comments on: "The Weather and My Dystonia" (2)

  1. Yes, unfortunately, the cold weather does not combine well with dystonia. One trick or tip is to really dress in layers – helps me. Have a great day!

  2. Hi,
    I am a former sufferer of dystonia and want to offer you my support if you are still struggling with this awful disorder.
    I have put many years of my life into helping dystonia sufferers find relief, and through my efforts was able to get a medical study done at Johns Hopkins Medical Center with the program that helped me.
    It is my pleasure and privilege to work full time in helping dystonia sufferers find relief and get educated
    on the health fundamentals that I have discovered that can make a huge difference on improving one’s health.
    I have been effective in helping dozens of dystonia sufferers find relief and have worked with those in
    over 20 countries and 47 states. Please feel free to call me if you would like to learn more about my work
    and how I have been helping others. There is nothing more enjoyable than seeing those I work with find the relief and hope as I received many years ago.

    Remember – I Care,
    Steve Zarren
    410-486-2525
    http://www.dystoniadisease.net

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