Fighting Dystonia, Chronic Lyme Disease & EDS Type 3… any questions?

Wheelchairs and me

After spending the last couple of weeks in a wheelchair, I have decided that I am not meant to be in one…EVER! I simple do not trust anyone pushing me. Now I know that no-one was ‘meant’ to be in a wheelchair, but I am honestly a control freak. Every curb, bump, lamp-post, person, etc, that appears sends me into a panic! I find myself constantly saying “please steer further away from the curb” purely because I am terrified of falling out.

I know that whoever is pushing me, is trying their best not to throw me out, or run into anyone/anything, but I panic anyway. I normally end up gripping the sides or leaning away from the curb, despite knowing that these actions will not stop me falling etc. I think most of my panic is because I know that if I was pushing the wheelchair, I would be an awful driver, so in my mind, everyone is automatically a bad driver.

However, I must admit, that despite my irrational fears when in my wheelchair, I have had a few amusing moments in it. Take for example, my mother the other day, deciding to run (whilst pushing me) down an aisle in Tesco singing the James Bond theme tune. It was a moment that had us both in fits of giggles.

My fear of other people pushing me in my wheelchair, has just increased my excitement at my upcoming treatment, if there is anyway they can improve my symptoms so that I am able to walk (even if its only for short distances) would be so amazing! I can only hope and pray for the best!

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