Fighting Dystonia, Chronic Lyme Disease & EDS Type 3… any questions?

There is always hope!

There is currently no known cure for Dystonia, patients are expected to accept this. Sufferers live in the knowledge that this is what their life will be like and they will just have to learn to get on with it. But why should we have to just accept it? I understand that acceptance is necessary to deal with this condition. Yet the way this acceptance is done is so negative! Why should we have to think oh great, this is it? Instead we should be thinking, Ok, so this is what I have, but science is always moving forward, you never know, they might find a cure sooner or later.

In my mind I am confident that I won’t always be this way, I remain hopefully that there will be a cure. It may not be for 10 or 20 years, but there will be a cure. They are already finding medicines and procedures that can help with dystonia, so they are already on the path to discover the cure. Without hope and confidence, a life with dystonia would be rather depressing! We should put faith in the scientists and researchers to keep on looking until they get the answer.

After all there is ALWAYS hope!!

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Comments on: "There is always hope!" (1)

  1. I’ve been waiting for a cure for 40 years and I still have HOPE! What gives me the most hope are fighters like you. Dystonia patients are an important part of the battle to advance medical knowledge. We speak and blog abut our condition, building awareness and interest. We fundraise. We advocate for better policies. Keep up the great attitude and great work! I’m right there with you on your approach to life.

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