Fighting Dystonia, Chronic Lyme Disease & EDS Type 3… any questions?

Cervical Dystonia

Cervical Dystonia is when the spasms are in the neck, this can be quite painful and can result in awkward neck postures.Generally the spasms will cause the head to pull to one side, backwards or forwards. In my case my head pulls down towards my left shoulder but with a forward twist. I also have a no style tremor to my neck. It is the most common form of Dystonia and according to The Dystonia Society is currently estimated to affect around 18,000 people in the UK. Like most forms of Dystonia if it occurs in adulthood then it will hopefully remain in just that part of the body.

The most effective treatment for Cervical Dystonia at the moment is regular Botox injections, though how well this work varies from sufferer to sufferer. I receive regular Botox injections to both sides of my neck and it has had a massive impact and helps me keep my head fairly straight  whilst the Botox is working. Medications such as muscles relaxants can provide people with some relief as well. Pressure being applied to specific points around the neck and face in some people is beneficial but this is not the same for everyone.

This image demonstrates some of the positions the spasms can pull the head in to.

Comments on: "Cervical Dystonia" (1)

  1. Stein Dølmo said:

    Thank you for posting this information. I hope you don’t mind if I spread this. Because I have torticollis, laterocollis and anterocollis in combination with something I think is oromandibular Dystonia.
    You write good and understandable, maybe you get a question on publishing some of your posts in the magazine for the Norwegian Dystonia Foundation.. ;)

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