I have dystonia…Any questions?

The weather is getting colder and colder each day, and as my little Dystonia alien hates the cold and loves to spasms more I have been investigating different ways to keep myself warm, without looking like a marshmallow. I’m sure many of you know the feeling of when you have so many layers of clothing on, you begin to look less like a human more like a marshmallow. As I know many other Dystonia sufferers find the cold worsens their symptoms I thought I would share with you all my top three products that I have found helpful – and for those of you without Dystonia who are reading this, it may interest you as well, after all everyone likes to keep warm!

1) Tozies – I am one of those people who if my feet are cold the rest of me is cold. My reflexologist recommended I invest in some Tozies. Tozies are slippers which are double fleece layered, and without a hard sole on them. Not having a hard sole means I don’t worry about my spasms bending them out of shape. I have to say these are fantastic, I am actually going to buy a second pair, but this time  a microwavable version for the really cold winter nights that leave you shivering. I wear my Tozies constantly, some nights I even sleep in them, as I find if my feet are toasty warm then the rest of me does not feel as cold. If you want to check them out here is the link to where I purchased mine http://coziewarmers.co.uk/ladies-slippers-shoe-size-3-12-22-c.aspImage

These are my Tozies.

2) Reusable heat pads – are my second favourite method for warming myself up. They are pads with a metal bit in, they come in all shapes, sizes and colors. When you bend the metal an internal chain reaction is set off which warms the pads up and causes them to harden. The warmth lasts for several hours. I have taken to wearing these pads in my shoes under my feet and inside my gloves. To reuse them you simply put them in a pan of hot water for a minute to return them to their original state. It’s a cheap, but effective method.

3) Thermals – Now I know saying wear thermals is an obvious one, but in all honesty how many of you actually remember to put some on under your clothing? I purchased some thermal socks, leggings and vests, and make sure I always have at least one, if not all, of them on. I got my thermals fairly cheaply off marks and spencers (you could probably get them even cheaper if you shopped around). It’s an obvious, but often overlooked, step to keeping warm.

I am always searching for ways to keep warm, to avoid the extra spasms that the winter brings. I hope some of these ideas helps those of you who find the cold causes extra issues.

 

Comments on: "Top Tips to Beat Cold Induced Spasms" (3)

  1. sandy evason said:

    Thanks Becky, I experience osteoarthritis and rheumatoid arthritis. Cold is definitely an no no for me as I end up like a very painful block of wood. Certainly will take on borad your warmth suggestions xx

  2. These are excellent tips. My daughter’s Paroxysmal Dyskinesia is very much aggravated by the cold weather. These will help! Thank you!

  3. Good suggestions…will definitely check out the Tozies. Long silk underwear (and socks and glove liners) also help – surprisingly good insulation even though it’s a thin layer.

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